Common Data Element: Clinical event or milestone type
Listed below are the details for the data element.
1.3
Element Type
Common Data Element
Clinical event or milestone type
ClinEvntMilestoneTyp
Short Description
Type of clinical event or milestone pertinent to the disease or disorder
Definition
Type of clinical event or milestone pertinent to the disease or disorder
Biomedical Terminologies and Standards
Notes
Creation Date
Historical Notes
Clinical event or milestone type
References
No references available
Data Type
Alphanumeric
Input Restrictions
Single Pre-Defined Value Selected
Pre-Defined Values
Population
Adult and Pediatric
Guidelines/Instructions
For each milestone record whether the participant/subject achieved it, age achieved in months (if applicable), whether the participant/subject is currently able to do it, and age skill lost in months (if applicable). "Maintained seated position unsupported" and "Walked independently (without braces)" are Core while all other milestones are Supplemental. *If participant/subject died, complete Death CRF
Preferred Question Text
Milestone
Category Groups and Classifications
Disease | Domain | Sub-Domain |
---|---|---|
Amyotrophic Lateral Sclerosis | Outcomes and End Points | Functional Status |
Multiple Sclerosis | Participant/Subject History and Family History | General Health History |
Spinal Muscular Atrophy | Disease/Injury Related Events | History of Disease/Injury Event |
General (For all diseases) | Participant/Subject History and Family History | General Health History |
Classification
Spinal Muscular Atrophy
:
Core
Amyotrophic Lateral Sclerosis
:
Exploratory
Multiple Sclerosis
:
Supplemental
General (For all diseases)
:
Supplemental
Keywords
Labels
NINDS_CDE
Effective Date
Until Date
Last Change Date
Wed Sep 27 11:22:37 EDT 2023
See Also
Submitting Organization Name
NIH/NINDS
Submitting Contact Name
NINDSCDE
Submitting Contact Information
NINDSCDE@emmes.com
Steward Organization
Name
NIH/NINDS
Steward Contact Name
NINDSCDE
Steward Contact Information
NINDSCDE@emmes.com
NINDS ID