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Common Data Element:  Death cause text

Listed below are the details for the data element.

1.3
Element Type
Common Data Element
Death cause text
DeathCauseTxt
Short Description
Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate.
Definition
Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate.
 

Biomedical Terminologies and Standards

Notes
Creation Date
2014-04-01
Historical Notes
C04800
References
TBI: International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM): http://www.cdc.gov/nchs/icd/icd9cm.htm

Data Type
Alphanumeric
Input Restrictions
Free-Form Entry
Maximum Character Quantity
255
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
GENERAL/MG/SMA/NMD/ Record what the death certificate lists as the official cause of death TBI: Recommend 4 fields for coding primary cause and other underlying or contributing causes of death. Should use death certificate if available.
Preferred Question Text
Primary cause of death
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Clinical Event End Points
Myasthenia Gravis Outcomes and End Points End Points
Traumatic Brain Injury Outcomes and End Points End Points
Neuromuscular Diseases Outcomes and End Points End Points
Spinal Muscular Atrophy Outcomes and End Points End Points

Classification

Moderate/Severe TBI: Rehabilitation :
Supplemental
Myasthenia Gravis :
Supplemental
Neuromuscular Diseases :
Supplemental
Spinal Muscular Atrophy :
Supplemental
Acute Hospitalized :
Supplemental
General (For all diseases) :
Supplemental
Epidemiology :
Supplemental
Concussion/Mild TBI :
Supplemental
Keywords
Neuropathology , CTE , Imaging , Imaging_Pathology
Labels
NINDS_CDE
Effective Date
Until Date
Last Change Date
Wed Sep 27 11:22:42 EDT 2023
See Also
Submitting Organization Name
NIH/NINDS
Submitting Contact Name
NINDSCDE
Submitting Contact Information
NINDSCDE@EMMES.COM
Steward Organization Name
NIH/NINDS
Steward Contact Name
NINDSCDE
Steward Contact Information
NINDSCDE@EMMES.COM
NINDS ID

Change History