Listed below are the details for the data element.
FITBIR
1.3
Element Type
Common Data Element
Death cause text
DeathCauseTxt
Short Description
Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate.
Definition
Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate.
Notes
Creation Date
2014-04-01
Historical Notes
C04800
References
TBI:
International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM): http://www.cdc.gov/nchs/icd/icd9cm.htm
Data Type
Alphanumeric
Input Restrictions
Free-Form Entry
Maximum Character Quantity
255
Population
Adult and Pediatric
Guidelines/Instructions
GENERAL/MG/SMA/NMD/
Record what the death certificate lists as the official cause of death
TBI: Recommend 4 fields for coding primary cause and other underlying or contributing causes of death. Should use death certificate if available.
Preferred Question Text
Primary cause of death
Category Groups and Classifications
| Disease | Domain | Sub-Domain |
|---|---|---|
| General (For all diseases) | Outcomes and End Points | Clinical Event End Points |
| Myasthenia Gravis | Outcomes and End Points | End Points |
| Traumatic Brain Injury | Outcomes and End Points | End Points |
| Neuromuscular Diseases | Outcomes and End Points | End Points |
| Spinal Muscular Atrophy | Outcomes and End Points | End Points |
Classification
Traumatic Brain Injury:
Supplemental
Concussion/Mild TBI
Epidemiology
Acute Hospitalized
Moderate/Severe TBI: Rehabilitation
Neuromuscular Diseases:
Supplemental
General (For all diseases):
Supplemental
Myasthenia Gravis:
Supplemental
Spinal Muscular Atrophy:
Supplemental
Keywords
Neuropathology
CTE
Imaging
Imaging_Pathology
Labels
NINDS_CDE
