Common Data Element: Death date and time
Listed below are the details for the data element.
1.6
Element Type
Common Data Element
Death date and time
DeathDateTime
Short Description
Date (and time, if known) of participant's/subject's death
Definition
Date (and time, if known) of participant's/subject's death
Biomedical Terminologies and Standards
Notes
CDISC variables: stored in DM.DTHDTC
Creation Date
Historical Notes
C04802
References
GENERAL/MG/NMD/SMA: No references available
HD/PD: ISO 8601 - http: //www.iso.org/iso/iso_catalogue.htm
TBI: Harrison-Felix C, Whiteneck G, DeVivo M, et al. Causes of Death after 1 Year Post injury among Individuals with Traumatic Brain Injury. J Head Trauma Rehabil. Jan-Feb 2006;21(1): 22-33. Harrison-Felix C, Whiteneck G, DeVivo M, et al. Mortality Following Rehabilitation in the Traumatic Brain Injury Model Systems of Care. NeuroRehabilitation. 2004;19(1): 45-54.
Data Type
Date or Date & Time
Input Restrictions
Free-Form Entry
Population
Adult and Pediatric
Guidelines/Instructions
GENERAL/HD/MG/NMD/SMA/TBI: Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http: //www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
PD: (DD/MMM/YYYY)
Preferred Question Text
Date and time of death
Category Groups and Classifications
| Disease | Domain | Sub-Domain |
|---|---|---|
| General (For all diseases) | Outcomes and End Points | Clinical Event End Points |
| Myasthenia Gravis | Outcomes and End Points | End Points |
| Traumatic Brain Injury | Outcomes and End Points | End Points |
| Neuromuscular Diseases | Outcomes and End Points | End Points |
| Parkinson's Disease | Assessments and Examinations | Other Clinical Data |
| Huntington's Disease | Assessments and Examinations | Other Clinical Data |
| Spinal Muscular Atrophy | Outcomes and End Points | End Points |
Classification
Myasthenia Gravis
:
Supplemental
Parkinson's Disease
:
Supplemental
Huntington's Disease
:
Supplemental
Concussion/Mild TBI
:
Supplemental
General (For all diseases)
:
Supplemental
Acute Hospitalized
:
Basic
Neuromuscular Diseases
:
Supplemental
Epidemiology
:
Supplemental
Spinal Muscular Atrophy
:
Supplemental
Moderate/Severe TBI: Rehabilitation
:
Basic
Keywords
Neuropathology
,
CTE
,
Imaging
,
Imaging_Pathology
Labels
NINDS_CDE
Effective Date
Until Date
Last Change Date
Wed Sep 27 11:22:47 EDT 2023
See Also
Submitting Organization Name
NIH/NINDS
Submitting Contact Name
NINDSCDE
Submitting Contact Information
NINDSCDE@EMMES.COM
Steward Organization
Name
NIH/NINDS
Steward Contact Name
NINDSCDE
Steward Contact Information
NINDSCDE@EMMES.COM
NINDS ID
