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Common Data Element:  Gender Type Extended

Listed below are the details for the data element.

1.4
Element Type
Common Data Element
Gender Type Extended
GenderTypExt
Short Description
Self-reported gender of the participant/subject.
Definition
Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically.
 

Biomedical Terminologies and Standards

Notes
Extended gender type to include subjects that identify as transgender, transgender male, or transgender female, as alternative to GenderTyp core CDE.
Creation Date
2016-02-29
Historical Notes
The NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research: The Office of Management and Budget Directive No. 15 (http://grants.nih.gov/grants/funding/women_min/guidelines_update.htm)
References

Data Type
Alphanumeric
Input Restrictions
Single Pre-Defined Value Selected
Pre-Defined Values
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
Choose one. Response is obtained by report of the participant/subject or caretaker.
Preferred Question Text
What is the subject's gender type?
Category Groups and Classifications
DiseaseDomainSub-Domain
Amyotrophic Lateral Sclerosis Participant/Subject Characteristics Demographics
Spinal Muscular Atrophy Participant/Subject Characteristics Demographics
Headache Participant/Subject Characteristics Demographics
Multiple Sclerosis Participant/Subject Characteristics Demographics
Neuromuscular Diseases Participant/Subject Characteristics Demographics
Friedreich's Ataxia Participant/Subject Characteristics Demographics
General (For all diseases) Participant/Subject Characteristics Demographics
Stroke Disease/Injury Related Events Classification
Traumatic Brain Injury Participant/Subject Characteristics Demographics
Epilepsy Participant/Subject Characteristics Demographics
Spinal Cord Injury N/A N/A
Stroke Participant/Subject Characteristics Demographics
Huntington's Disease Participant/Subject Characteristics Demographics
Myasthenia Gravis Participant/Subject Characteristics Demographics
Parkinson's Disease Participant/Subject Characteristics Demographics
Parkinson's Disease Assessments and Examinations Other Clinical Data
Huntington's Disease Assessments and Examinations Other Clinical Data

Classification

Acute Hospitalized :
Core
Headache :
Core
Huntington's Disease :
Supplemental
Spinal Cord Injury :
Core
Epilepsy :
Core
Epidemiology :
Core
Parkinson's Disease :
Supplemental
Myasthenia Gravis :
Core
Spinal Muscular Atrophy :
Core
Amyotrophic Lateral Sclerosis :
Core
Friedreich's Ataxia :
Core
General (For all diseases) :
Core
Multiple Sclerosis :
Core
Moderate/Severe TBI: Rehabilitation :
Core
Concussion/Mild TBI :
Core
Neuromuscular Diseases :
Core
Stroke :
Core
Keywords
gender , TRACK_TBI
Labels
Effective Date
Until Date
Last Change Date
Fri Apr 21 17:07:52 EDT 2023
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
LeVon Greer
Submitting Contact Information
levon.greer@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
LeVon Greer
Steward Contact Information
levon.greer@nih.gov
NINDS ID

Change History