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Common Data Element:  Pediatric Quality of Life Inventory (PedsQL) Family Information Form - Impact scale chronic health condition text

Listed below are the details for the data element.

1.0
Element Type
Common Data Element
Pediatric Quality of Life Inventory (PedsQL) Family Information Form - Impact scale chronic health condition text
PedsQLFIFImSclChrncHlthCndTxt
Short Description
The free-text field to capture the name of the chronic health condition, as a part of the Pediatric Quality of Life Inventory (PedsQL) Family Information Form.
Definition
The free-text field to capture the name of the chronic health condition, as a part of the Pediatric Quality of Life Inventory (PedsQL) Family Information Form.
 

Biomedical Terminologies and Standards

Notes
Creation Date
2016-11-07
Historical Notes
C50482
References
Copyright 1998 JW Varni, PhD. All rights reserved. Varni, James W., Michael Seid, and Paul S. Kurtin. Pediatric health-related quality of life measurement technology: A guide for health care decision makers. JCOM-WAYNE PA- 6 (1999): 33-44.

Data Type
Alphanumeric
Input Restrictions
Free-Form Entry
Maximum Character Quantity
4000
External Schema Permissible Value Mapping
Population
Pediatric
Guidelines/Instructions
If the answer to the previous question was yes, the individual filling out the form should provide the name of the chronic health condition the child in question suffered from.
Preferred Question Text
IF YES, What is the name of your child's chronic health condition?
Category Groups and Classifications
DiseaseDomainSub-Domain
Traumatic Brain Injury Outcomes and End Points Global Outcome
General (For all diseases) Outcomes and End Points Other Clinical Data

Classification

Epidemiology :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
General (For all diseases) :
Supplemental
Acute Hospitalized :
Supplemental
Concussion/Mild TBI :
Supplemental
Keywords
Family_information , PedsQL , Quality_of_Life
Labels
Effective Date
Until Date
Last Change Date
Tue May 08 20:03:58 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Submitting Contact Information
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History