Common Data Element: Pediatric Quality of Life Inventory (PedsQL) Family Impact Module - Communication hard tell doctor scale
Listed below are the details for the data element.
1.0
Element Type
Common Data Element
Pediatric Quality of Life Inventory (PedsQL) Family Impact Module - Communication hard tell doctor scale
PedsQLFIMCommHardTellDctrScl
Short Description
Scale of how often the parent finds it hard to tell doctors and nurses how he or she feels, as part of the Pediatric Quality of Life Inventory (PedsQL) Family Impact Module.
Definition
Scale of how often the parent finds it hard to tell doctors and nurses how he or she feels, as part of the Pediatric Quality of Life Inventory (PedsQL) Family Impact Module.
Biomedical Terminologies and Standards
Notes
Q3 Communication
Creation Date
2016-11-02
Historical Notes
C50347
References
Copyright 1998 JW Varni, PhD . All rights reserved. Varni, James W., Michael Seid, and Cheryl A. Rode. "The PedsQL�: measurement model for the pediatric quality of life inventory." Medical care 37.2 (1999): 126-139.
Data Type
Numeric Values
Input Restrictions
Single Pre-Defined Value Selected
Pre-Defined Values
Population
Adult and Pediatric
Guidelines/Instructions
Families of children sometimes have special concerns or difficulties because of the child�s health. On the following page is a list of things that might be a problem for you. Please tell us how much of a problem each one has been for you during the past ONE month/7 days (Acute) by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is almost always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help.
Preferred Question Text
It is hard for me to tell doctors and nurses how I feel
Category Groups and Classifications
| Disease | Domain | Sub-Domain |
|---|---|---|
| Traumatic Brain Injury | Outcomes and End Points | Global Outcome |
| General (For all diseases) | Assessments and Examinations | Physical/Neurological Examination |
Classification
Acute Hospitalized
:
Supplemental
Concussion/Mild TBI
:
Supplemental
Epidemiology
:
Supplemental
General (For all diseases)
:
Supplemental
Moderate/Severe TBI: Rehabilitation
:
Supplemental
Keywords
module
,
Family
,
PedsQL
,
ImPACT
Labels
Effective Date
Until Date
Last Change Date
Tue May 08 20:02:50 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Submitting Contact Information
Steward Organization
Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
Olga.Vovk@nih.gov
NINDS ID
