Our website detected that you are using a browser (Internet Explorer) that we no longer support. Please use the following browsers instead: Chrome, Firefox, Edge, or Safari.

Common Data Element:  Pediatric Quality of Life Inventory (PedsQL) Family Impact Module - Parent HRQL Summary Score

Listed below are the details for the data element.

1.0
Element Type
Common Data Element
Pediatric Quality of Life Inventory (PedsQL) Family Impact Module - Parent HRQL Summary Score
PedsQLFIMPrtHRQLSumScore
Short Description
Summary score for physical, emotional, social, and cognitive functioning scales, as a part of the Pediatric Quality of Life Inventory (PedsQL) Family Impact Module.
Definition
Summary score for physical, emotional, social, and cognitive functioning scales, as a part of the Pediatric Quality of Life Inventory (PedsQL) Family Impact Module.
 

Biomedical Terminologies and Standards

Notes
Creation Date
2016-11-02
Historical Notes
References
Copyright 1998 JW Varni, PhD . All rights reserved. Varni, James W., Michael Seid, and Cheryl A. Rode. "The PedsQL�: measurement model for the pediatric quality of life inventory." Medical care 37.2 (1999): 126-139.

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
0
Maximum Value
4
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
The Parent HRQL Summary Score (20 items) is computed as the sum of the items divided by the number of items answered in the Physical, Emotional, Social, and Cognitive Functioning scales.
Preferred Question Text
Parent HRQL Summary Score
Category Groups and Classifications
DiseaseDomainSub-Domain
Traumatic Brain Injury Outcomes and End Points Global Outcome
General (For all diseases) Assessments and Examinations Physical/Neurological Examination

Classification

General (For all diseases) :
Supplemental
Concussion/Mild TBI :
Supplemental
Acute Hospitalized :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Epidemiology :
Supplemental
Keywords
module , Parent_HRQL_Summary_Score , Family , PedsQL , ImPACT
Labels
Effective Date
Until Date
Last Change Date
Tue May 08 20:03:27 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Submitting Contact Information
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
Olga.Vovk@nih.gov
NINDS ID

Change History