Pediatric Quality of Life Inventory (PedsQL) - With not being able to do things that other teens/kids their age can do scale : FITBIR : Federal Interagency Traumatic Brain Injury Research Informatics System

Listed below are the details for the data element.

Resource

FITBIR

Version

1.1

Element Type

Common Data Element

Title

Pediatric Quality of Life Inventory (PedsQL) - With not being able to do things that other teens/kids their age can do scale

Variable Name

PedsQLNotDoThingScl

Short Description

Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL).

Definition

Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL).

Notes

SOCIAL FUNCTIONING: Parent/Self: Q4

Creation Date

2016-02-12

Historical Notes

References

Copyright ý 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23.

Data Type

Numeric Values

Input Restrictions

Single Pre-Defined Value Selected

External Schema Permissible Value Mapping

Population

Adult and Pediatric

Guidelines/Instructions

On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help.

Preferred Question Text

SOCIAL FUNCTIONING: DOING THINGS: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do; For all other Age Ranges: In the past month,how much of a problem has your child had with: Not being able to do things that other children his or her age can do? Standard Version: Self: In the past one month, how much of a problem has this been for you: I cannot do things that other kids my age can do. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do; For all other Age Ranges: In the past 7 days,how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do. Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I cannot do things that other kids my age can do.

Category Groups and Classifications

Disease	Domain	Sub-Domain
General (For all diseases)	Assessments and Examinations	Physical/Neurological Examination
Traumatic Brain Injury	Outcomes and End Points	Social Role Participation and Social Competence