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Listed below are the details for the data element.

1.1
Element Type
Common Data Element
Pediatric Quality of Life Inventory (PedsQL) - With not being able to do things that other teens/kids their age can do scale
PedsQLNotDoThingScl
Short Description
Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL).
Definition
Scale of problems with not being able to do things that other teens/kids their age can do, as part of the Pediatric Quality of Life Inventory (PedsQL).
 

Biomedical Terminologies and Standards

Notes
SOCIAL FUNCTIONING: Parent/Self: Q4
Creation Date
2016-02-12
Historical Notes
References
Copyright ý 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23.

Data Type
Numeric Values
Input Restrictions
Single Pre-Defined Value Selected
Pre-Defined Values
Population
Adult and Pediatric
Guidelines/Instructions
On the following page is a list of things that might be a problem for you/your child/your teen . Please tell us how much of a problem each one has been for your during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help.
Preferred Question Text
SOCIAL FUNCTIONING: DOING THINGS: Standard Version: Parent: TEEN: In the past one month, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do; For all other Age Ranges: In the past month,how much of a problem has your child had with: Not being able to do things that other children his or her age can do? Standard Version: Self: In the past one month, how much of a problem has this been for you: I cannot do things that other kids my age can do. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do; For all other Age Ranges: In the past 7 days,how much of a problem has your teen had with: Not being able to do things that other teens his or her age can do. Acute Version: Self: In the past 7 days, how much of a problem has this been for you: I cannot do things that other kids my age can do.
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Assessments and Examinations Physical/Neurological Examination
Traumatic Brain Injury Outcomes and End Points Social Role Participation and Social Competence

Classification

General (For all diseases) :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Concussion/Mild TBI :
Supplemental
Epidemiology :
Supplemental
Acute Hospitalized :
Supplemental
Keywords
PedsQL , Quality_of_Life
Labels
Effective Date
Until Date
Last Change Date
2018-04-20
See Also
Submitting Organization Name
BRICS/NIH/CIT
Submitting Contact Name
Smilee Samuel
Submitting Contact Information
smilee.samuel@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History