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Common Data Element:  Pediatric Quality of Life Inventory (PedsQL) - Trouble remembering what you was just thinking scale

Listed below are the details for the data element.

1.1
Element Type
Common Data Element
Pediatric Quality of Life Inventory (PedsQL) - Trouble remembering what you was just thinking scale
PedsQLTrblThkScl
Short Description
Scale of problems with remembering what you were just thinking, as part of the Pediatric Quality of Life Inventory (PedsQL).
Definition
Scale of problems with remembering what you were just thinking, as part of the Pediatric Quality of Life Inventory (PedsQL).
 

Biomedical Terminologies and Standards

Notes
Parent/Self: COGNITIVE FATIGUE: Q5
Creation Date
2016-02-19
Historical Notes
References
Copyright 1998 JWVarni, Ph.D. Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23.

Data Type
Numeric Values
Input Restrictions
Single Pre-Defined Value Selected
Pre-Defined Values
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
On the following page is a list of things that might be a problem for you/your teen. Please tell us how much of a problem each one has been for you/your teen during the past ONE month by circling: 0 if it is never a problem, 1 if it is almost never a problem, 2 if it is sometimes a problem, 3 if it is often a problem, 4 if it is always a problem. There are no right or wrong answers. If you do not understand a question, please ask for help.
Preferred Question Text
COGNITIVE FATIGUE: Standard Version: Parent: TEEN: In the past one month, how much of a problem has this been for your teen with trouble remembering what he/she was just thinking; FOR ALL OTHER AGE RANGES: In the past one month, how much of a problem has it been for your child with trouble remembering what he/she was just thinking.Standard Version: Self: In the past one month, how much of a problem has this been for you with: I have trouble remembering what I was just thinking; FOR ALL OTHER AGE RANGES: In the past one month, how much of a problem has it been for your child with trouble remembering what he/she was just thinking. Acute Version: Parent: TEEN: In the past 7 days, how much of a problem has this been for your teen with trouble remembering what he/she was just thinking; FOR ALL OTHER AGE RANGES: In the past 7 days, how much of a problem has it been for your child with trouble remembering what he/she was just thinking. Acute Version: Self: In the past 7 days, how much of a problem has this been for you with: I have trouble remembering what I was just thinking.
Category Groups and Classifications
DiseaseDomainSub-Domain
Traumatic Brain Injury Outcomes and End Points Cognitive Activity Limitations
General (For all diseases) Assessments and Examinations Physical/Neurological Examination

Classification

Moderate/Severe TBI: Rehabilitation :
Supplemental
Epidemiology :
Supplemental
Acute Hospitalized :
Supplemental
Concussion/Mild TBI :
Supplemental
General (For all diseases) :
Supplemental
Keywords
PedsQL , MultidimensionalFatigueScale
Labels
Effective Date
Until Date
Last Change Date
Fri Apr 20 15:20:20 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Smilee Samuel
Submitting Contact Information
smilee.samuel@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History