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Common Data Element:  Pediatric Quality of Life Inventory(PedsQL) - Total Score

Listed below are the details for the data element.

1.1
Element Type
Common Data Element
Pediatric Quality of Life Inventory(PedsQL) - Total Score
PedsQLTtlScore
Short Description
Total Score as a part of Pediatric Quality of Life Inventory (PedsQL).
Definition
Total Score as a part of Pediatric Quality of Life Inventory (PedsQL).
 

Biomedical Terminologies and Standards

Notes
Creation Date
2016-02-12
Historical Notes
References
Copyright ý 1998 JWVarni, Ph.D.Varni J.W., Seid M., and Rode C.A. (1998). Pediatric Quality of Life Inventory. Lyon: Mapi Research Trust. Survey copyright by James W. Varni. Retrieved from the PROQOLID website: http://www.proqolid.org/content/download/11861/176794/version/1/file/RC_PedsQL-4.0-Core-All_AU4.0_eng-USori.pdf, Generic Score Scales pg.20-23; http://www.proqolid.org/content/download/11824/176685/version/1/file/RC_PedsQL-3.0-Cog+Functioning-All_AU3.0_eng-USori.pdf, Cognitive Functioning Scale pg.20-23. Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
0
Maximum Value
100
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
Scoring instructions for all PedsQL Instruments: http://www.pedsql.org/PedsQL-Scoring.pdf. Step 1: Transform Score: Items are reversed scored and linearly transformed to a 0-100 scale as follows: 0=100, 1=75, 2=50, 3=25,4=0. Step 2: Calculate Scores: Score by Dimensions: If more than 50% of the items in the scale are missing, the Scale Scores should not be computed. Mean Score = Sum of the items over the numbers of items answered.
Preferred Question Text
Total Score= Sum of al the items over the number of items answered on all the Scales
Category Groups and Classifications
DiseaseDomainSub-Domain
Traumatic Brain Injury Outcomes and End Points Global Outcome
General (For all diseases) Assessments and Examinations Physical/Neurological Examination

Classification

Concussion/Mild TBI :
Supplemental
Epidemiology :
Supplemental
General (For all diseases) :
Supplemental
Acute Hospitalized :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Keywords
PedsQL , Quality_of_Life
Labels
Effective Date
Until Date
Last Change Date
Fri Apr 20 15:21:30 EDT 2018
See Also
Submitting Organization Name
BRICS/NIH/CIT
Submitting Contact Name
Smilee Samuel
Submitting Contact Information
smilee.samuel@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History