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Common Data Element:  Quality of Life After Brain Injury - Overall Scale (QOLIBRI-OS) -Total scale score

Listed below are the details for the data element.

1.10
Element Type
Common Data Element
Quality of Life After Brain Injury - Overall Scale (QOLIBRI-OS) -Total scale score
QOLIBRIOSTotalScaleScore
Short Description
Total scale score for Quality of Life After Brain Injury (QOLIBRI) overall scale, as part of Quality of Life After Brain Injury (QOLIBRI)
Definition
Total scale score for Quality of Life After Brain Injury (QOLIBRI) overall scale, as part of Quality of Life After Brain Injury (QOLIBRI)
 

Biomedical Terminologies and Standards

Notes
The QOLIBRI-OS consists of six novel items that assess overall satisfaction with facets of life relevant to people with TBI. Areas covered by the questionnaire include physical condition,cognition,emotion,function in daily life and social life, and current and future prospects. Age range 17-68.
Creation Date
2016-06-16
Historical Notes
References
QOLIBRI-OS overall scale: A brief index of health-related quality of life after traumatic brain injury Nicole Von Steinbuechel et al: https://moh-it.pure.elsevier.com/en/publications/qolibri-overall-scale-a-brief-index-of-health-related-quality-of- QUOLIBRI:Von Steinbuechel, Nicole, et al. ;QOLIBRI overall scale: a brief index of health-related quality of life after traumatic brain injury. Journal of Neurology, Neurosurgery & Psychiatry 83.11 (2012): 1041-1047. Interpreting Quality of Life after Brain Injury (QOLIBRI) scores: Cross-walk with the Short Form-36, Lindsay Wilson et al, 2012

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
0
Maximum Value
100
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
Responses to each items were scored 1( 'Not at all') to 5 ('Very'). QOLIBRI-OS Total score is calculated by summing all the 6 sub-scales (Cognition, Self, Daily Life and Autonomy, and Social Relationships, and feeling bothered by Emotions, and Physical Problems.). Responses to each item were scored 1 (Not at all) to 5 (Very) and them summed and the score mean is calculated. The QOLIBRI-OS score (maximum = 100) was calculated by computing the mean for the 6 items, provided no more than two responses were missing, and converting this to a percent score by subtracting one and then multiplying by 25. QOLIBRI-0S scores range from 0 to 100, with 0 representing the lowest possible health-related quality of life (HRQoL) in brain injury on the questionnaire and 100 the best possible HRQoL.( Lindsay Wilson et al, 2012) Age range 17-68.
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
Traumatic Brain Injury Participant/Subject Characteristics Social Status
General (For all diseases) Participant/Subject Characteristics Social Status

Classification

Epidemiology :
Supplemental
General (For all diseases) :
Supplemental
Acute Hospitalized :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Concussion/Mild TBI :
Supplemental
Keywords
See_also , TAUG_TBI , QOLIBRIOS , Knowledge_graph
Labels
Effective Date
Until Date
Last Change Date
Thu Jul 30 09:56:15 EDT 2020
See Also
GlasgowOutcomeScalExtScore; PGOSEScore; AUDITTotalScore; AUDITCTotalScore; BESSTotalErrorCt; BESSTotalErrorCt; BSI18AnxScoreRaw; BSI18AnxScoreT; BSI18DeprScoreRaw; BSI18DeprScoreT; BSI18SomScoreRaw; BSI18SomScoreT; BSI18GSIScoreRaw; BSI18GSIScoreT; CHARTSFCogIndependScore; CHARTSFEconSelfSufficScore; CHARTSFMobilityScore; CHARTSFOccupScore; CHARTSFPhysIndependScore; CHARTSFSocialIntgratnScore; COWATRawTotalScore; COWATTtlErrorslNum; CSSRSSucdIdeationIntstyRtScore; CSSRSSucdIdeationScore; DRSTotalScore; QOLIBRIOSTotalScaleScore; PGCSTotalScore; GCSTotalScore; FIMInstrTotalScore; FIMTotalScore; GAD7TotScore; GOATTotalScore; JFKCRSRTotalScore; MaddocksScoreTotalScore; MarshallCTScore; MPAI4TotTScore; NOSTBIWithoutSupplemItemsScore; NOSTBISupplementalItemsScore; PHQSomDisInd; PHQDepressionGtr10Ind; PHQAlcAbuInd; PHQ9TotalScore; PHQ8TotalScore; PCSIPGenerallyDifferentScale; PCSITotalScore; PCL5SymptmSeverityScore; SF36V1SocialFunctTotalScore; SF36V2SFTotalRawScore; RAVLTTrialIToVTotRawScore; RPQTotalScore; RPQ13Score; RPQ3Score; RotterdamCTScore; SWLSTotalScore; SACTotalScore; WTARRawScore; WTARStandardScore; WTARCumulativePercentVal
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Malaika Schwartz
Submitting Contact Information
mschwartz@sapient.com
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History