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Common Data Element:  Quality of Life After Brain Injury (QOLIBRI) - Social relationships scale score

Listed below are the details for the data element.

1.0
Element Type
Common Data Element
Quality of Life After Brain Injury (QOLIBRI) - Social relationships scale score
QOLIBRISocialRltnScaleScore
Short Description
Social relationships scale score, as part of the Quality of Life After Brain Injury (QOLIBRI)
Definition
Social relationships scale score, as part of the Quality of Life After Brain Injury (QOLIBRI)
 

Biomedical Terminologies and Standards

Notes
Responses to the satisfaction items (i.e. items on the Cognition, Self, Daily Life & Autonomy, and Social Relationships scales) are coded on a 1 to 5 scale, where 1= not at all satisfied and 5=very satisfied; Social scale consists of; Affections towards others; Family members; Friends; Partner; Sex life; Attitudes of others. Responses to thesatisfaction items(i.e.itemsontheCognition,Self,DailyLife&Autonomy,andSocialRelationshipsscales)arecodedona1to5scale,where1=notatallsatisfiedand5=very satisfied.Responses to the bothered items(i.e.items on the Emotions and Physical Problems scales)arereversescoredtocorrespondwiththesatisfactionitems,where1=verybotheredand5=notatallbothered.
Creation Date
2016-06-15
Historical Notes
References
The authors, all rights reserved,www.qolibrinet.com. For details contact nvsteinbuechel@med.uni-goettingen.de.;Steinbuchel, N., Petersen, C., et al. (2005).Assessment of health-related quality of life in persons after traumatic brain injurydevelopment of the Qolibri, a specific measure.Re-Engineering of the Damaged Brain and Spinal Cord: 43-49.

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
0
Maximum Value
100
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
The responses on each scale are summed to give a total, and then divided by the number of responses to give a scale mean. The scale means have a maximum possible range of 1 to 5. The mean can be computed when there are some missing responses, but should not be calculated if more than one third of responses on the scale are missing. The scale means are converted to the 0-100 scale by subtracting 1 from the mean and then multiplying by 25. This produces scale scores which have a lowest possible value of 0 (worst possible quality of life) and a maximum value of 100 (best possible quality of life);Four scales assessed satisfaction - faction with Social relationships (6). Responses were recorded on a 5-point scale: Not at all/ Slightly/ Moderately/ Quite/ Very. The bothered items had an additional (filter) category: Does not apply. During scoring, the endorsements of this option were coded as Not at all. Scale scores were presented on a percentage scale (0-100). Age range 17-68.
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
Traumatic Brain Injury Participant/Subject Characteristics Social Status
General (For all diseases) Participant/Subject Characteristics Social Status

Classification

Moderate/Severe TBI: Rehabilitation :
Supplemental
General (For all diseases) :
Supplemental
Acute Hospitalized :
Supplemental
Concussion/Mild TBI :
Supplemental
Epidemiology :
Supplemental
Keywords
QOLIBRI
Labels
Effective Date
Until Date
Last Change Date
Tue May 08 20:38:25 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Malaika Schwartz
Submitting Contact Information
mschwartz@sapient.com
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History