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Common Data Element:  Quality of Life After Brain Injury (QOLIBRI) -Total scale score

Listed below are the details for the data element.

1.0
Element Type
Common Data Element
Quality of Life After Brain Injury (QOLIBRI) -Total scale score
QOLIBRITotalScaleScore
Short Description
Total scale score for Quality of Life After Brain Injury (QOLIBRI) scale, as part of Quality of Life After Brain Injury (QOLIBRI)
Definition
Total scale score for Quality of Life After Brain Injury (QOLIBRI) scale, as part of Quality of Life After Brain Injury (QOLIBRI)
 

Biomedical Terminologies and Standards

Notes
Creation Date
2016-06-15
Historical Notes
References
The authors, all rights reserved,www.qolibrinet.com. For details contact nvsteinbuechel@med.uni-goettingen.de.;Steinbuchel, N., Petersen, C., et al. (2005).Assessment of health-related quality of life in persons after traumatic brain injurydevelopment of the Qolibri, a specific measure.Re-Engineering of the Damaged Brain and Spinal Cord: 43-49.

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
0
Maximum Value
100
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
The QOLIBRI scores are reported on a 0-100 scale, where 0=worst possible quality of life and 100=best possible quality of life. the QOLIBRI Total score is calculated by summing all the responses, and then dividing by the actual number of responses. Again, a total score should not be calculated if more than one third of responses are missing. The scale means are converted to the 0-100 scale by subtracting 1 from the mean and then multiplying by 25. This produces scale scores which have a lowest possible value of 0 (worst possible quality of life) and a maximum value of 100 (best possible quality of life). Age range 17-68.
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
Traumatic Brain Injury Participant/Subject Characteristics Social Status
General (For all diseases) Participant/Subject Characteristics Social Status

Classification

Epidemiology :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
General (For all diseases) :
Supplemental
Acute Hospitalized :
Supplemental
Concussion/Mild TBI :
Supplemental
Keywords
QOLIBRI
Labels
Effective Date
Until Date
Last Change Date
Tue May 08 20:37:51 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Malaika Schwartz
Submitting Contact Information
mschwartz@sapient.com
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History