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Common Data Element:  Quality of Life in Neurological Disorders (Neuro-Qol) - Items completed count

Listed below are the details for the data element.

1.3
Element Type
Common Data Element
Quality of Life in Neurological Disorders (Neuro-Qol) - Items completed count
QoLItemCompletedCount
Short Description
The count of items on the Neuro-Qol form completed by the participant, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
Definition
The count of items on the Neuro-Qol form completed by the participant, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
 

Biomedical Terminologies and Standards

Notes
cdRNS|FITBIR|PDBP;
Creation Date
2015-09-15
Historical Notes
References
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.Qual Life Res 2006;A14: 1353. http://www.neuroqol.org/Resources/Neuro-QoLReports-Manuals/Pages/default.aspx; http://www.neuroqol.org/Resources/Resources%20documents/Neuro-QOL_User%20Manual%20v2_24Mar2015.pdf

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
0
Maximum Value
150
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
Refer to the instrument scoring manual - http://www.neuroqol.org/Resources/Neuro-QoLReports-Manuals/Pages/default.aspx; http://www.neuroqol.org/Resources/Resources%20documents/Neuro-QOL_User%20Manual%20v2_24Mar2015.pdf
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Other Clinical Data
Traumatic Brain Injury Outcomes and End Points Patient Reported Outcomes

Classification

General (For all diseases) :
Supplemental
Concussion/Mild TBI :
Supplemental
Acute Hospitalized :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Epidemiology :
Supplemental
Keywords
Quality_of_Life , NeuroQol
Labels
Effective Date
Until Date
Last Change Date
Fri Aug 11 14:57:45 EDT 2023
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Mary Ivory
Submitting Contact Information
mivory@sapient.com
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History