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Listed below are the details for the data element.

1.0
Element Type
Common Data Element
Quality of Life in Neurological Disorders (Neuro-Qol) - Long Form Raw score
QoLLFRawScore
Short Description
The participant's raw score on the Neuro-Qol form, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
Definition
The participant's raw score on the Neuro-Qol form, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).
 

Biomedical Terminologies and Standards

Notes
Creation Date
2022-08-04
Historical Notes
References
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.Qual Life Res 2006;A14: 1353. http://www.neuroqol.org/Resources/Neuro-QoLReports-Manuals/Pages/default.aspx; http://www.neuroqol.org/Resources/Resources_documents/Neuro-QOL_User_Manual 20v2_24Mar2015.pdf

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
11
Maximum Value
225
Population
Adult and Pediatric
Guidelines/Instructions
Refer to the instrument scoring manual - http://www.neuroqol.org/Resources/Neuro-QoLReports-Manuals/Pages/default.aspx; http://www.neuroqol.org/Resources/Resources_documents/Neuro-QOL_User_Manual_v2_24Mar2015.pdf
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Other Clinical Data
Traumatic Brain Injury Outcomes and End Points Patient Reported Outcomes

Classification

Acute Hospitalized :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
General (For all diseases) :
Supplemental
Epidemiology :
Supplemental
Concussion/Mild TBI :
Supplemental
Keywords
Quality_of_Life , NeuroQol
Labels
Effective Date
Until Date
Last Change Date
2022-08-12
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Submitting Contact Information
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Steward Contact Information
NINDS ID

Change History