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Listed below are the details for the data element.

1.5
Element Type
Common Data Element
Quality of Life in Neurological Disorders (Neuro-Qol) - T-score value
QoLTScore
Short Description
The value of the T-score, a standardized score with a mean of 50 and a standard deviation (SD) of 10 representing the rescaled raw score, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).(PROMIS).
Definition
The value of the T-score, a standardized score with a mean of 50 and a standard deviation (SD) of 10 representing the rescaled raw score, as part of the Quality of Life in Neurological Disorders (Neuro-Qol).(PROMIS).
 

Biomedical Terminologies and Standards

Notes
cdRNS|FITBIR|PDBP;
Creation Date
2015-09-15
Historical Notes
References
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM. The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.Qual Life Res 2006;A14: 1353. http://www.neuroqol.org/Resources/Neuro-QoLReports-Manuals/Pages/default.aspx; http://www.neuroqol.org/Resources/Resources%20documents/Neuro-QOL_User%20Manual%20v2_24Mar2015.pdf

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
10
Maximum Value
90
Population
Adult and Pediatric
Guidelines/Instructions
T-score distributions rescale raw scores into standardized scores with a mean of 50 and a standard deviation (SD) of 10. Thus, a person who has a T-score of 60 is one SD above the average of the referenced populations, either the US general population or clinical populations. For more information, refer to the instrument scoring manual - http://www.neuroqol.org/Resources/Neuro-QoLReports-Manuals/Pages/default.aspx; http://www.neuroqol.org/Resources/Resources%20documents/Neuro-QOL_User%20Manual%20v2_24Mar2015.pdf
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Other Clinical Data
Traumatic Brain Injury Outcomes and End Points Patient Reported Outcomes

Classification

Acute Hospitalized :
Supplemental
Concussion/Mild TBI :
Supplemental
General (For all diseases) :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Epidemiology :
Supplemental
Keywords
Quality_of_Life , NeuroQol
Labels
NINDS_CDE
Effective Date
Until Date
Last Change Date
2023-08-11
See Also
Submitting Organization Name
NIH/NINDS
Submitting Contact Name
NINDSCDE
Submitting Contact Information
NINDSCDE@emmes.com
Steward Organization Name
NIH/NINDS
Steward Contact Name
NINDSCDE
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History