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Listed below are the details for the data element.

1.1
Element Type
Common Data Element
Symptom onset date and time
SymptmOnsetDateTime
Short Description
Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms
Definition
Date (and time, if applicable and known) reported for onset of participant's/subject's symptoms
 

Biomedical Terminologies and Standards

Notes
Data Sharing Instructions: When date/time data are prepared for aggregation or sharing they should be converted to the format specified by ISO 8601, YYYY-MM-DDThh:mm:ss.
Creation Date
Historical Notes
Symptom onset date and time
References
ALS: ISO 8601, the International Standard for the representation of dates and times (http: //www.iso.org/iso/home.html) GENERAL/PD/SMA/TBI: No references available MS/STROKE: Get With The Guidelines (GWTG) Stroke Patient Management Tool Coding Instructions (Updated on 11/4/2009); Paul Coverdell National Acute Stroke Registry

Data Type
Date or Date & Time
Input Restrictions
Free-Form Entry
Population
Adult and Pediatric
Guidelines/Instructions
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http: //www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). Symptom is referring to dysphasia, dysarthria, focal weakness, shortness of breath, gait disturbance. Symptom does NOT refer to cramps, fatigue or fasciculations. GENERAL/SMA/TBI: Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http: //www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).If date is unknown, leave date blank and check Unknown on the form. In the study database a convention should be developed for entering unknown or partial dates. Data Sharing Instructions: When date/time data are prepared for aggregation or sharing they should be converted to the format specified by ISO 8601, YYYY-MM-DDThh: mm: ss. MS: Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http: //www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). Symptom is referring to dysphasia, dysarthria, focal weakness, shortness of breath, gait disturbance. Symptom does NOT refer to cramps, fatigue or fasciculati The time of symptom discovery is either the time at which the patient was first noted by another person to have stroke symptoms or the self-reported time by an individual who may not be accurate or reliable in their assessment of stroke symptoms onset (e.g., in the setting of neglect or anosagnosia, or aphasia). When the event is witnessed by another person, then the time of discovery is identical to the time of last known well; however, when unwitnessed or self-reported by an unreliable patient, this time of discovery will be later chronologically than the time last known well. For Multiple Sclerosis studies, it is sufficient to just record the month and year of first symptoms in the format MM/YYYY. PD: Provide approximate date for all Motor Symptoms Developing Over the Course of Illness. If date is unknown, leave date blank and check Unknown on the form. In the study database a convention should be developed for entering unknown or partial dates. STROKE: The time of symptom discovery is either the time at which the patient was first noted by another person to have stroke symptoms or the self-reported time by an individual who may not be accurate or reliable in their assessment of stroke symptoms onset (e.g., in the setting of neglect or anosagnosia, or aphasia). When the event is witnessed by another person, then the time of discovery is identical to the time of last known well; however, when unwitnessed or self-reported by an unreliable patient, this time of discovery will be later chronologically than the time last known well. Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http: //www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).
Preferred Question Text
Symptom onset date and time
Category Groups and Classifications
DiseaseDomainSub-Domain
Parkinson's Disease Disease/Injury Related Events History of Disease/Injury Event
General (For all diseases) Disease/Injury Related Events History of Disease/Injury Event

Classification

Parkinson's Disease :
Supplemental
General (For all diseases) :
Supplemental
Keywords
Medical_History , COVID
Labels
Effective Date
Until Date
Last Change Date
2020-05-20
See Also
Submitting Organization Name
NIH/NINDS
Submitting Contact Name
Submitting Contact Information
Steward Organization Name
NIH/NINDS
Steward Contact Name
Steward Contact Information
NINDS ID

Change History