Common Data Element: TBI Quality of Life (TBI-QOL) - Ability participate in social roles activity raw score
Listed below are the details for the data element.
1.3
Element Type
Common Data Element
TBI Quality of Life (TBI-QOL) - Ability participate in social roles activity raw score
TBIQOLAbilPartRawScore
Short Description
The raw score for the summation of responses for TBI-QOL Ability to Participate in Social Roles and Activities.
Definition
The raw score for the summation of responses for TBI-QOL Ability to Participate in Social Roles and Activities.
Biomedical Terminologies and Standards
Notes
10 Included Items are as follows: NQPRF09;NQPRF18;NQPRF14;NQPRF29;NQPRF21;NQPRF03;NQPRF06;NQPRF3;NQPRF39;NQPRF32
Creation Date
2016-06-02
Historical Notes
References
TBI-QOL Items Copyright 2015 David Tulsky and Kessler Foundation;Tulsky, D. S., Kisala, P. A., Victorson, D., Carlozzi, N., Bushnik, T., Sherer, M., & Englander, J. (2016). TBI-QOL: development and calibration of item banks to measure patient reported outcomes following traumatic brain injury. The Journal of Head Trauma Rehabilitation, 31(1), 40-51.;Department of Physical Therapy, University of Delaware, College of Health Sciences, STAR Health Sciences Complex
Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
10
Maximum Value
50
Population
Adult
Guidelines/Instructions
The participant should answer all of the questions.Sum the responses on the form to create a raw score
The higher the score, more of the construct of ability to participate in social roles and activities is being measured.
A higher score represents more ability to participate in social roles and activities (better functioning).
Preferred Question Text
Raw Score
Category Groups and Classifications
Disease | Domain | Sub-Domain |
---|---|---|
General (For all diseases) | Outcomes and End Points | Other Clinical Data |
Traumatic Brain Injury | Outcomes and End Points | Patient Reported Outcomes |
Classification
Epidemiology
:
Supplemental
Acute Hospitalized
:
Supplemental
Concussion/Mild TBI
:
Supplemental
Moderate/Severe TBI: Rehabilitation
:
Supplemental
General (For all diseases)
:
Supplemental
Keywords
TBIQOL
,
Roles
,
Social
,
Ability
,
Activities
,
Participate
Labels
Effective Date
Until Date
Last Change Date
Mon Apr 16 10:16:06 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Heather Rodney
Submitting Contact Information
heather.rodney@nih.gov
Steward Organization
Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID