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Common Data Element:  TBI Quality of Life (TBI-QOL) - Emotional behavioral dyscontrol score

Listed below are the details for the data element.

1.3
Element Type
Common Data Element
TBI Quality of Life (TBI-QOL) - Emotional behavioral dyscontrol score
TBIQOLEBDRawScore
Short Description
The raw score related to a set of injury and/or treatment related manifestations including disinhibition, emotional liability, irritability, impatience, and impulsiveness, as part of the TBI Quality of Life (TBI-QOL).
Definition
The raw score related to a set of injury and/or treatment related manifestations including disinhibition, emotional liability, irritability, impatience, and impulsiveness, as part of the TBI Quality of Life (TBI-QOL).
 

Biomedical Terminologies and Standards

Notes
10 included items are as follows: PersEBD1 (formerly NQPER02);NQPER05;NQPER06;NQPER07;NQPER16;NQPER17;NQPER19;Pers_23;Pers_28;Pers_29
Creation Date
2016-05-26
Historical Notes
References
TBI-QOL Items Copyright ý 2015 David Tulsky and Kessler Foundation. All rights reserved. Tulsky DS et al, TBI-QOL: Development and Calibration of Item Banks to Measure Patient Reported Outcomes Following Traumatic Brain Injury. J Head Trauma Rehabil. 2015 Apr 29. http://www.ncbi.nlm.nih.gov/pubmed/25931189. Department of Physical Therapy, University of Delaware, College of Health Sciences, STAR Health Sciences Complex

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
10
Maximum Value
50
External Schema Permissible Value Mapping
Population
Adult
Guidelines/Instructions
After a participant has answered all of the questions on the short-form, sum the responses on the form to create a raw score. The participant should answer all of the questions./ The higher the score, more of the construct of emotional and behavioral dyscontrol is being measured. A higher score represents more emotional and behavioral dyscontrol (worse functioning). A lower score represents less emotional and behavioral dyscontrol (better functioning).
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Other Clinical Data
Traumatic Brain Injury Outcomes and End Points Patient Reported Outcomes

Classification

Concussion/Mild TBI :
Supplemental
General (For all diseases) :
Supplemental
Acute Hospitalized :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Epidemiology :
Supplemental
Keywords
TBIQOL , dyscontrol
Labels
Effective Date
Until Date
Last Change Date
Mon Apr 16 10:16:21 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Juilien Hsu
Submitting Contact Information
juilien.hsu@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History