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Common Data Element:  TBI Quality of Life (TBI-QOL) - Grief loss raw score

Listed below are the details for the data element.

1.0
Element Type
Common Data Element
TBI Quality of Life (TBI-QOL) - Grief loss raw score
TBIQOLGriefRawScore
Short Description
The raw score related to emotional reactions of grief (the natural process of reacting to a loss) such as anger, guilt, anxiety, sadness, and despair, as part of the TBI Quality of Life (TBI-QOL).
Definition
The raw score related to emotional reactions of grief (the natural process of reacting to a loss) such as anger, guilt, anxiety, sadness, and despair, as part of the TBI Quality of Life (TBI-QOL).
 

Biomedical Terminologies and Standards

Notes
9 included items are as follows: Grief_10, Grief_11, Grief_13, Grief_15, Grief_2, Grief_28, Grief_29, Grief_6, Grief_7
Creation Date
2016-06-02
Historical Notes
References
TBI-QOL Items Copyright ý 2015 David Tulsky and Kessler Foundation. All rights reserved. Tulsky DS et al, TBI-QOL: Development and Calibration of Item Banks to Measure Patient Reported Outcomes Following Traumatic Brain Injury. J Head Trauma Rehabil. 2015 Apr 29. http://www.ncbi.nlm.nih.gov/pubmed/25931189. Department of Physical Therapy, University of Delaware, College of Health Sciences, STAR Health Sciences Complex

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
9
Maximum Value
45
External Schema Permissible Value Mapping
Population
Adult and Pediatric
Guidelines/Instructions
After a participant has answered all of the questions on the short-form, sum the responses on the form to create a raw score. The participant should answer all of the questions./ The higher the score, more of the construct of grief and loss is being measured. A higher score represents more grief and loss (worse functioning). A lower score represents less grief and loss (better functioning).
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Other Clinical Data
Traumatic Brain Injury Outcomes and End Points Patient Reported Outcomes

Classification

General (For all diseases) :
Supplemental
Epidemiology :
Supplemental
Acute Hospitalized :
Supplemental
Concussion/Mild TBI :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Keywords
grief , loss , TBIQOL
Labels
Effective Date
Until Date
Last Change Date
Mon Apr 16 10:16:16 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Juilien Hsu
Submitting Contact Information
juilien.hsu@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History