Our website detected that you are using a browser (Internet Explorer) that we no longer support. Please use the following browsers instead: Chrome, Firefox, Edge, or Safari.

Common Data Element:  TBI Quality of Life (TBI-QOL) - Independence raw score

Listed below are the details for the data element.

1.0
Element Type
Common Data Element
TBI Quality of Life (TBI-QOL) - Independence raw score
TBIQOLIndepRawScore
Short Description
The raw score related to perceived independence, ability to tell others about one's needs, and sense of control over one's life, as part of the TBI Quality of Life (TBI-QOL).
Definition
The raw score related to perceived independence, ability to tell others about one's needs, and sense of control over one's life, as part of the TBI Quality of Life (TBI-QOL).
 

Biomedical Terminologies and Standards

Notes
8 included items are as follows: INDEP_31, INDEP_58, INDEP_33, INDEP_32, INDEP_72t, INDEP_46, INDEP_64, INDEP_57
Creation Date
2016-05-27
Historical Notes
References
TBI-QOL Items Copyright ý 2015 David Tulsky and Kessler Foundation. All rights reserved. Tulsky DS et al, TBI-QOL: Development and Calibration of Item Banks to Measure Patient Reported Outcomes Following Traumatic Brain Injury. J Head Trauma Rehabil. 2015 Apr 29. http://www.ncbi.nlm.nih.gov/pubmed/25931189. Department of Physical Therapy, University of Delaware, College of Health Sciences, STAR Health Sciences Complex

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
8
Maximum Value
40
External Schema Permissible Value Mapping
Population
Adult
Guidelines/Instructions
After a participant has answered all of the questions on the short-form, sum the responses on the form to create a raw score. The participant should answer all of the questions./ The higher the score, more of the construct of independence is being measured. A higher score represents more independence (better functioning).
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Other Clinical Data
Traumatic Brain Injury Outcomes and End Points Patient Reported Outcomes

Classification

General (For all diseases) :
Supplemental
Acute Hospitalized :
Supplemental
Concussion/Mild TBI :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Epidemiology :
Supplemental
Keywords
independence , TBIQOL
Labels
Effective Date
Until Date
Last Change Date
Thu Mar 26 16:19:55 EDT 2020
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Juilien Hsu
Submitting Contact Information
juilien.hsu@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History