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Listed below are the details for the data element.

1.0
Element Type
Common Data Element
TBI Quality of Life (TBI-QOL) - Stigma raw score
TBIQOLStigRawScore
Short Description
The raw score related to others' perceptions of oneself and publically enacted negativity, prejudice, and discrimination as a result of injury-related manifestations, as part of the TBI Quality of Life (TBI-QOL).
Definition
The raw score related to others' perceptions of oneself and publically enacted negativity, prejudice, and discrimination as a result of injury-related manifestations, as part of the TBI Quality of Life (TBI-QOL).
 

Biomedical Terminologies and Standards

Notes
7 included items are as follows: Stigma_19, NQSTG01, NQSTG02, NQSTG08, NQSTG04, Stigma_26, NQSTG06
Creation Date
2016-05-26
Historical Notes
References
TBI-QOL Items Copyright ý 2015 David Tulsky and Kessler Foundation. All rights reserved. Tulsky DS et al, TBI-QOL: Development and Calibration of Item Banks to Measure Patient Reported Outcomes Following Traumatic Brain Injury. J Head Trauma Rehabil. 2015 Apr 29. http://www.ncbi.nlm.nih.gov/pubmed/25931189. Department of Physical Therapy, University of Delaware, College of Health Sciences, STAR Health Sciences Complex

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
7
Maximum Value
35
Population
Adult and Pediatric
Guidelines/Instructions
After a participant has answered all of the questions on the short-form, sum the responses on the form to create a raw score. The participant should answer all of the questions./ The higher the score, more of the construct of stigma is being measured. A higher score represents more stigma (worse functioning). A lower score represents less stigma (better functioning).
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Other Clinical Data
Traumatic Brain Injury Outcomes and End Points Patient Reported Outcomes

Classification

Acute Hospitalized :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Concussion/Mild TBI :
Supplemental
General (For all diseases) :
Supplemental
Epidemiology :
Supplemental
Keywords
TBIQOL , stigma
Labels
Effective Date
Until Date
Last Change Date
2018-04-16
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Juilien Hsu
Submitting Contact Information
juilien.hsu@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History