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Common Data Element:  TBI- Quality of Life (TBI-QOL) Upper extremity raw score

Listed below are the details for the data element.

1.0
Element Type
Common Data Element
TBI- Quality of Life (TBI-QOL) Upper extremity raw score
TBIQOLUEXRawScore
Short Description
The raw score for TBI-QOL Upper Extremity.
Definition
The raw score for TBI-QOL Upper Extremity.
 

Biomedical Terminologies and Standards

Notes
9 included items are as follows: NQUEX02;NQUEX04;NQUEX18;PFA28;PFA35;PFB21;PFB22;PFB26;PFB41;The higher the score, more of the construct of upper extremity function is being measured.;A higher score represents more upper extremity function (better functioning).
Creation Date
2016-06-02
Historical Notes
References
TBI-QOL Items Copyright 2015 David Tulsky and Kessler Foundation. All rights reserved.;Neuro-QOL Items Copyright 2008-2013 David Cella on behalf of the NINDS. ;Tulsky, D. S., Kisala, P. A., Victorson, D., Carlozzi, N., Bushnik, T., Sherer, M., & Englander, J. (2016). TBI-QOL: development and calibration of item banks to measure patient reported outcomes following traumatic brain injury. The Journal of Head Trauma Rehabilitation, 31(1), 40-51.;Department of Physical Therapy, University of Delaware, College of Health Sciences, STAR Health Sciences Complex

Data Type
Numeric Values
Input Restrictions
Free-Form Entry
Minimum Value
9
Maximum Value
45
External Schema Permissible Value Mapping
Population
Adult
Guidelines/Instructions
After a participant has answered all of the questions on the short-form, sum the responses on the form to create a raw score. The participant should answer all of the questions.
Preferred Question Text
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Other Clinical Data
Traumatic Brain Injury Outcomes and End Points Patient Reported Outcomes

Classification

General (For all diseases) :
Supplemental
Epidemiology :
Supplemental
Concussion/Mild TBI :
Supplemental
Moderate/Severe TBI: Rehabilitation :
Supplemental
Acute Hospitalized :
Supplemental
Keywords
TBIQOL
Labels
Effective Date
Until Date
Last Change Date
Tue May 08 20:45:27 EDT 2018
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Heather Rodney
Submitting Contact Information
heather.rodney@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History