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Listed below are the details for the data element.

1.0
Element Type
Common Data Element
TBI Quality of Life (TBI-QOL) - Uncomfortable with me scale
TBIQOLUncomfrtblWithMeScl
Short Description
The scale representing how often the participant felt some people seemed uncomfortable with him/her because of his/her injury lately, as part of Traumatic Brain Injury-Quality of Life (TBI-QOL).
Definition
The scale representing how often the participant felt some people seemed uncomfortable with him/her because of his/her injury lately, as part of Traumatic Brain Injury-Quality of Life (TBI-QOL).
 

Biomedical Terminologies and Standards

Notes
NEURO-QOL: NQSTG01; LOINC: 68098-3
Creation Date
2016-05-26
Historical Notes
References
TBI-QOL Items Copyright ý 2015 David Tulsky and Kessler Foundation. All rights reserved. Neuro-QOL Items Copyright ý 2008-2013 David Cella on behalf of the NINDS. Tulsky DS et al, TBI-QOL: Development and Calibration of Item Banks to Measure Patient Reported Outcomes Following Traumatic Brain Injury. J Head Trauma Rehabil. 2015 Apr 29. http://www.ncbi.nlm.nih.gov/pubmed/25931189. Department of Physical Therapy, University of Delaware, College of Health Sciences, STAR Health Sciences Complex

Data Type
Numeric Values
Input Restrictions
Single Pre-Defined Value Selected
Pre-Defined Values
Population
Adult and Pediatric
Guidelines/Instructions
Please refer to the instrument user manual for more detail.
Preferred Question Text
Lately some people seemed uncomfortable with me because of my injury.
Category Groups and Classifications
DiseaseDomainSub-Domain
General (For all diseases) Outcomes and End Points Other Clinical Data
Traumatic Brain Injury Outcomes and End Points Patient Reported Outcomes

Classification

Moderate/Severe TBI: Rehabilitation :
Supplemental
Epidemiology :
Supplemental
Acute Hospitalized :
Supplemental
General (For all diseases) :
Supplemental
Concussion/Mild TBI :
Supplemental
Keywords
TBIQOL , stigma
Labels
Effective Date
Until Date
Last Change Date
2018-04-16
See Also
Submitting Organization Name
NIH/CIT/BRICS
Submitting Contact Name
Juilien Hsu
Submitting Contact Information
juilien.hsu@nih.gov
Steward Organization Name
NIH/CIT/BRICS
Steward Contact Name
Olga Vovk
Steward Contact Information
olga.vovk@nih.gov
NINDS ID

Change History