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FITBIR will soon be using the Researcher Auth Service (RAS) for log in. You can learn more about the change in the RAS User Guide. The site will be down from 8:00am to 12:00pm on December 8th to implement this change.
The GUID Tool is a customized software application that generates a Global Unique Identifier for each study participant. The GUID is a subject ID that allows researchers to share data specific to a study participant without exposing personally identifiable information (PII). The GUID is made up of random alpha-numeric characters and is NOT generated from PII/PHI. As such, it has been approved by the NIH Office of General Counsel. GUID Generation complies with HIPAA regulations for the protection of PII/PHI. For more information regarding GUID and HIPAA click here.
In order to submit data to FITBIR, the system expects all prospective studies to include a GUID in the data submission. For retrospective studies, the FITBIR team understands that the participant data needed to generate a GUID may not be available. To account for this, FITBIR provides the capability to generate pseudo-GUIDs. However, submitting data with pseudo-GUIDs silos the associated research data from the other data associated with valid GUIDs.
The process for generating a GUID is listed below:
PII cannot be extracted from these hash codes, they are strictly one-way hash algorithms
GUID generation process: Learn More
The GUID process has two important attributes:
In order to generate a GUID for a subject, the following PII is required:
In order to generate a GUID for a subject, the following PII is optional: